Searching on Ichthyosis
5 people found, showing 1 to 5
I have found 5 people listed against Ichthyosis
They are listed below, sorted by location.
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* To save room on the page we use the term disabled to indicate those with disabilities, special need or a medical condition.
Australia ( Australasia )
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affected person : Mar 2000
Relationship: Grandmother Siblings : 2 Disabled siblings : 0My granddaughter has ichthyosis and I would like to have contact with anyone at all glesga28@hotmail.com
England
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affected person : Aug 1999
Relationship: Mother Siblings : 6 Disabled siblings : 0My daughter has severe ichthyosis
location not given
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affected person : Dec 1983
Relationship: Sister Siblings : 7 Disabled siblings : 1he has a skin condition called harlequin icthyosis
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affected person : Feb 1981
Relationship: Female Affected Adult Siblings : 1 Disabled siblings : 0I have had a type of icyhthosis since I was a tiny baby and I have been to so many doctors of my twenty-five years.
New Zealand ( Australasia )
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affected person : Aug 2008
Relationship: Mother Siblings : 0 Disabled siblings : 0My son has suspected Netherton Syndrome. Still waiting for confirmation of diagnosis. Would like to contact any families with children with this syndrome to get a better understanding of how they work their households and life around this syndrome.
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