||||FAQs
Quick search

Enter condition:   Advanced search

This site has recently been updated. If you encounter any problems, please let us know.

Ichthyosis thumbnail of directory

5 people found, showing 1 to 5

To save room on the page we use the term disabled to indicate those with disabilities, special need or a medical condition.

 

Australia ( Australasia )

Mar 2000  female
Family type: not given
Siblings: 2
Disabled siblings: 0
Username: Chrissie
Relationship: Grandmother
Other conditions: None

Last updated: 07 Aug 2006
Brief summary: My granddaughter has ichthyosis and I would like to have contact with anyone at all glesga28@hotmail.com

England

Aug 1999  female
Family type: two parent family
Siblings: 6
Disabled siblings: 0
Username: jazalex2002
Relationship: Mother
Other conditions: None

Last updated: 09 Sep 2004
Brief summary: My daughter has severe ichthyosis

location not given

Dec 1983  male
Family type: two parent family
Siblings: 7
Disabled siblings: 1
Username: dawar_14
Relationship: Sister
Other conditions:
Harlequin Ichthyosis (1)

Last updated: 20 Oct 2005
Brief summary: he has a skin condition called harlequin icthyosis
Feb 1981  female
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: sierra
Relationship: Female Affected Adult
Other conditions: None

Last updated: 22 Jun 2006
Brief summary: I have had a type of icyhthosis since I was a tiny baby and I have been to so many doctors of my twenty-five years.

New Zealand ( Australasia )

Aug 2008  male
Family type: two parent family
Siblings: 0
Disabled siblings: 0
Username: DancerMum
Relationship: Mother
Other conditions:
Netherton Syndrome (8)

Last updated: 14 Nov 2008
Brief summary: My son has suspected Netherton Syndrome. Still waiting for confirmation of diagnosis. Would like to contact any families with children with this syndrome to get a better understanding of how they work their households and life around this syndrome.

List yourself against this condition

Add yourself to this conditionAdd Yourself To This Condition. A minimum of Silver membership is required, but it's free and secure.

Contact a Family Directory thumbnail of directory & UK Support Groups G

A page for this condition is in the Contact a Family Directory, it may be able to help you further.

If a UK Support group is available for this condition you can access their details by using the above link and clicking on the blue 'Is there support?' option on the right menu of the screen.

© MakingContact.org 2010
Contact a Family, 209-211 City Road, London EC1V 1JN
Tel: (020) 7608 8700

Registered Charity No. 284912. Company limited by guarantee, registered in England and Wales No. 1633333.
HM Revenue & Customs charity tax reference No. XN54769.
VAT Reg. No. GB 749 3846 82