Searching on Ichthyosis
5 people found, showing 1 to 5
I have found 5 people listed against Ichthyosis
They are listed below, sorted by location.
Click their username to see more details about them or contact them.
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* To save room on the page we use the term disabled to indicate those with disabilities, special need or a medical condition.
Australia ( Australasia )
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affected person : Mar 2000
Relationship: Grandmother Siblings : 2 Disabled siblings : 0My granddaughter has ichthyosis and I would like to have contact with anyone at all glesga28@hotmail.com
England
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affected person : Aug 1999
Relationship: Mother Siblings : 6 Disabled siblings : 0My daughter has severe ichthyosis
location not given
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affected person : Dec 1983
Relationship: Sister Siblings : 7 Disabled siblings : 1he has a skin condition called harlequin icthyosis
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affected person : Feb 1981
Relationship: Female Affected Adult Siblings : 1 Disabled siblings : 0I have had a type of icyhthosis since I was a tiny baby and I have been to so many doctors of my twenty-five years.
New Zealand ( Australasia )
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affected person : Aug 2008
Relationship: Mother Siblings : 0 Disabled siblings : 0My son has suspected Netherton Syndrome. Still waiting for confirmation of diagnosis. Would like to contact any families with children with this syndrome to get a better understanding of how they work their households and life around this syndrome.
Affected Person
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If a UK Support group is available for this condition you can access their details by using the above link and clicking on the blue 'Is there support?' option on the right menu of the screen.
