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Member details for HopeForSyd

Last updated: 15 Jan 2008
 

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HopeForSyd
Family type: Two parent family
Siblings: 2
Disabled siblings: 2
Brief summary: My Daughter, now 6, has Dravet syndrome, SCN1A muation Mental and physical delays I have information on organizations and resources to help you Feel free to contact me You are not alone, Dina

Location: United States of America
Languages spoken: english
Member since: 15 Jan 2008
Full story:
My Daughter, now 6, has Dravet syndrome, SMEI SCN1A muation. Mental and physical delays. I have information on organizations and resources to help you. Feel free to contact me.
You are not alone,
Dina

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