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Marcus Gunn syndrome

also listed as Jaw Winking syndrome

50 people found, showing 26 to 50

To save room on the page we use the term disabled to indicate those with disabilities, special need or a medical condition.
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location not given

Apr 2002  female
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: Nico01
Relationship: Mother
Other conditions: None

Last updated: 11 Jul 2006
Brief summary: Our daughter is 4 and has Marcus-gunn jaw winking ptosis. This was noticed from a very early age

Nov 1973  female
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: pieceapork
Relationship: Female Affected Adult
Other conditions: None

Last updated: 01 Sep 2006
Brief summary: MGS in left eye. Droop is worse when tired and winking evident when moving jaw both sideways and up and down.

Nov 2002  female
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: plewerif64
Relationship: Mother
Other conditions: None

Last updated: 23 Aug 2006
Brief summary: my daughter has the marcus gunn jaw winking syndromw and a ptoisi of her right eye she has alreary had one surgery but that failed we are now going privet to a doctor in norwich to try and get the eyelid lifted as it is affecting her sight.

Dec 1968  not given
Family type: single parent family
Siblings: 3
Disabled siblings: 0
Username: rccomp
Relationship: Male Affected Adult
Other conditions: None

Last updated: 19 May 2006
Brief summary: Have had Marcus Gunn for 37 years, no surgery.

Jan 1984  male
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: sheffwedfan
Relationship: Male Affected Adult
Other conditions: None

Last updated: 10 Apr 2006
Brief summary: Im 22 year old male who has marcuss gunn. Im thinking about getting it corrected because it is starting to annnoy me, im always conscious of it. Has anyone else had surgery. thanks

Jan 1984  male
Family type: not given
Siblings: 1
Disabled siblings: 0
Username: tony1984
Relationship: Male
Other conditions: None

Last updated: 26 Aug 2006
Brief summary: no summary given

Aug 2005  male
Family type: two parent family
Siblings: 0
Disabled siblings: 0
Username: txaggie99
Relationship: Mother
Other conditions: None

Last updated: 29 Apr 2006
Brief summary: My son was diagnosed with this when he was a few weeks old.

North Lanarkshire ( Scotland )

Nov 1961  male
Family type: two parent family
Siblings: 3
Disabled siblings: 0
Username: clansman
Relationship: Male Affected Adult
Other conditions: None

Last updated: 14 Mar 2009
Brief summary: Winking was noticed when I was being bottle fed eventually diagnosed with Marcus Gunn Syndrome at the age of 2. Corrective surgery at the age of 16. Initially successful, but eyelids have since dropped - right eye more than left.

Renfrewshire ( Scotland )

Jul 1987  female
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: lifepursuit
Relationship: Female - Same Person
Other conditions: None

Last updated: 20 Apr 2009
Brief summary: I'm 21 and was diagnosed with marcus gunn in my right eye at birth. I have had 2 operations which have been fairly successful but i still have a slight ptosis. If anyone has any questions don't hesitate to ask!

Somerset ( South West )

Nov 2005  female
Family type: not given
Siblings: 0
Disabled siblings: 0
Username: zi1974
Relationship: Mother
Other conditions: None

Last updated: 12 Nov 2007
Brief summary: My daughter has Marcus Gunn Jaw Winking and has a severe ptosis associated with it. She is now 2 year old and has regular check from local hospital every 6 months.

South West ( England )

May 2014  male
Family type: two parent family
Siblings: 0
Disabled siblings: 0
Username: Proudmummy84
Relationship: Mother
Other conditions: None

Last updated: 15 Aug 2014
Brief summary: My 3 month old son has Marcus Gunn jaw winking syndrome and ptosis in both eyes.

United Arab Emirates ( Middle East )

Oct 2003  male
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: mashmish
Relationship: Father
Other conditions: None

Last updated: 03 Mar 2007
Brief summary: My son was diognised with Marcus Gunn Jaw Winking Syndrome when he was few moths old. He is now 3+.

United States of America ( Americas )

Dec 1982  female
Family type: two parent family
Siblings: 1
Disabled siblings: 2
Username: alley2
Relationship: Female - Same Person
Other conditions: None

Last updated: 07 Dec 2006
Brief summary: I have had marcus gunn jaw wink since birth. I only recently had surgery at 22. I chose a surgery not to correct the wink but only to raise the affected left lid. I am very satisfied with the outcome.

Jun 1987  female
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: avanineglect
Relationship: Female - Same Person
Other conditions: None

Last updated: 16 Apr 2007
Brief summary: Diagnosed in infancy with marcus gunn jaw-wink syndrome and associated 3mm ptosis in left eye. vision is also poor, more so in left eye than right.

Jul 1968  male
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: GS1968
Relationship: Male - Same Person
Other conditions: None

Last updated: 03 Feb 2007
Brief summary: I was born with Marcus Gunn in 1968 in my right eye. In addition to the winking, also have the drooping eyelid. Have noticed a number of under-corrected eyelid surgeries mentioned on this site, and have the same story.

Mar 1991  female
Family type: not given
Siblings: 5
Disabled siblings: 0
Username: kbaby316
Relationship: Female - Same Person
Other conditions: None

Last updated: 23 Jan 2013
Brief summary: Hi im Kaci im 21 and I've had Marcus Gunn syndrome my whole life. Just wanted to see if there were people like me out there !!

Jan 2004  male
Family type: single parent family
Siblings: 0
Disabled siblings: 0
Username: LittleStar
Relationship: Mother
Other conditions: None

Last updated: 14 Mar 2006
Brief summary: Michael was diagnosed with Marcus Gunn Jaw Winking Syndrome when he was almost three months old.

Sep 2013  female
Family type: two parent family
Siblings: 2
Disabled siblings: 0
Username: LJBsmom
Relationship: Mother
Other conditions: None

Last updated: 16 Nov 2013
Brief summary: MGJWS(Marcus Jaw winking)

Mar 2006  female
Family type: two parent family
Siblings: 0
Disabled siblings: 0
Username: mgjwsmom
Relationship: Mother
Other conditions: None

Last updated: 05 Oct 2006
Brief summary: I am the mother of a 6-month-old girl who was just diagnosed with Marcus Gunn Jaw-Winking Syndrome. I have a million questions about this and would love to be contacted by anyone with information on MGJWS.

Feb 1987  female
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: MKetchu1
Relationship: Female Affected Adult
Other conditions: None

Last updated: 14 Jul 2006
Brief summary: I was diagnosed with Marcus Gunn Jawwinking, right eye, as a infant. I have had no corrective surguries.

Apr 1975  male
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: northernX
Relationship: Male Affected Adult
Other conditions: None

Last updated: 18 Feb 2006
Brief summary: 30 yo male. No surgeries. No long term complications.

Jul 1986  female
Family type: two parent family
Siblings: 0
Disabled siblings: 0
Username: ositaverde
Relationship: Female Affected Adult
Other conditions: None

Last updated: 10 Aug 2006
Brief summary: I was born with Congenital Infant Glaucoma. Marcus Gunn Jaw Wink was a result of the surgery to remedy the glaucoma. I've never met or spoken to anyone with the condition and I would really love to.

Jan 1946  female
Family type: not given
Siblings: 0
Disabled siblings: 0
Username: Reggie
Relationship: Female Affected Adult
Other conditions: None

Last updated: 12 Sep 2007
Brief summary: I'm a 61 year old female that was just diagnosed with Marcus Gunn Jaw-winking Phenomena/Sydrome by my neurologist. As an adult, I am having difficulty finding information about treatment.

Jan 1981  not given
Family type: two parent family
Siblings: 0
Disabled siblings: 0
Username: schumi_1
Relationship: Male Affected Adult
Other conditions: None

Last updated: 14 Apr 2006
Brief summary: I was born in India but live in the US now. I've had the Marcus Gunn Syndrome since birth. In the early 80s I don't think there was much of an understanding of this subject atleast in India, so I did not undergo any treatment whatsoever. But my conditio

Wakefield ( West Yorkshire )

Mar 1979  female
Family type: two parent family
Siblings: 3
Disabled siblings: 0
Username: Biscuitbabe1
Relationship: Female Affected Adult
Other conditions: None

Last updated: 23 Dec 2012
Brief summary: not given

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Related conditions 

There are conditions similar or related to this one that have people listed against them. They are listed below. If there are UK Support groups available, they will be indicated by this G icon. Click this icon to view the list of available support groups.

Condition (also listed as) No. of members Support Group
17 Ketosteroid Reductase Deficiency 0 -
3 Hydroxy Acyl CoA Dehydrogenase Deficiency 0 -
3 Methylglutaconic Adicuria 0 -
5 Alpha Reductase Deficiency 0 -
Acquired Partial Lipodystrophy 14 -
Acrodermatitis Enteropathica 4 -
ACTH Deficiency (Isolated ACTH Deficiency) 3 -
Adenylosuccinate Lyase Deficiency 1 -
Aldosteronism 0 -
Alpers disease 24 -
Alpha Amino Adipic Aciduria 0 -
Alports syndrome (Alport syndrome) 4 -
Amyloidosis 1 -
Arginase Deficiency 0 -
Argininosuccinic Aciduria 6 -
Aromatic Amino Acid Decarboxylase Deficiency 0 -
Barth syndrome (3 Methylglutaconic Aciduria Type II) 2 G
Bartter syndrome (aldosteronism-normal blood pressure syndrome; Pseudo-Bartters; aldosteronism with hypokalemic alkalosis; juxtaglomerular hyperplasia syndrome) 5 -
Berardinelli Lipodystrophy 0 -
Biotin Deficiency 1 -
Biotinidase deficiency 1 -
Carbohydrate Deficient Glycoprotein syndrome 2 -
Carnitine 0 -
Cerebral Lipidosis 0 -
Cerebrohepatorenal 0 -
Cholesteryl Ester Transfer Protein Deficiency 0 -
Chylomocron Retention disease 0 -
Citrullinaemia 5 -
Congenital Adrenal Hyperplasia (Adrenal Hyperplasia; CAH; adrenogenital syndrome) 11 G
Congenital Chloride Diarrhoea 1 -
Congenital disorders of Glycosylation (CDG; Carbohydrate Deficient Glycoprotein syndromes) 5 -
Congenital Folate Malabsorption (ICFM) 0 -
Congenital Hyperinsulinism (Persistent Hyperinsulinism Hypoglycaemia of Infancy; PHHI; Nesidioblastosis) 2 -
Creatine Transporter Deficiency syndrome (SLC6A8 deficiency) 5 -
Cystinosis 1 -
Cystinuria 2 -
Cytochrome C Oxidase Deficiency (COX Deficiency) 2 -
Danon disease (Glycogen Storage disease Type 2B; Glycogen Storage Disease Type IIb; Lysosomal Glycogen Storage disease with Normal Acid Maltase) 0 -
DHPR Deficiency (Phenylketonuria II; Dihydropteridine Reductase Deficiency; Atypical PKU) 2 -
Dihydropyrimidine Dehydrogenase Deficiency 0 -
Ethylmalonic Adipic Aciduria 0 -
Fabry's disease (Anderson-Fabry disease; Haemorrhagic Nodular Glycolipid Lipidosis; Angiokeratoma corporis diffusum) 0 G
Fahr disease (Fahr syndrome; Fahr's syndrome; Fahr's disease; Idiopathic Basal Ganglia Calcification; FIBGC) 0 -
Fanconi syndrome 2 -
Fibrodysplasia Ossificans Progressiva (Myositis Ossificans) 0 -
Fish Odour syndrome 2 -
Gangliosidosis GM1 and GM2 3 -
Glucose 6 Phosphate Dehydrogenase Deficiency 1 -
Glucose Galactose Malabsorption Deficiency 0 -
Guanadinoacetate Methyltransferase (GAMT) 0 -
Hartnup disease (Tryptophan Malabsorption) 0 -
Hereditary Fructose Intolerance 0 -
Homocystinuria 3 -
Hyperglycinaemia 0 -
Hyperinsulinism (Functional hypoglycaemic syndrome; hyperinsulinism syndrome; organic hyperinsulinism syndrome; Harriss syndrome; hyperinsulinoma; reactive functional hypoglycaemia.) 4 -
Hyperoxaluria (Oxalosis) 1 -
Hyperphosphatasia 0 -
Hypertriglycridaemia 0 -
Hypocalcaemia 0 -
Hypoglycaemia 0 -
Hypoparathyroidism 10 -
Hypophosphatasia 0 -
Hypophosphatemic Rickets (VitaminResistant Rickets M) 6 -
Idiopathic Hypoparathyroidism 2 -
Isolated ACTH Deficiency Isovaleric Acidaemia 0 -
Isolated Glycerol Kinase Deficiency (Glycerol Kinase Deficiency; GKD; GK Deficiency; GK1 Deficiency; Hyperglycerolaemia) 4 -
Kearne-Sayer disease 5 -
Kearns-Sayer disease 3 -
Leigh's disease 34 -
Leukodystrophy 18 -
Lipodystrophy (Berardinelli Lipodystrophy; Mandibuoacral Dysplasia; MAD; Familial Partial Lipodystrophy) 2 -
Long Chain 3 Hydrocylacyl COA Dehydrogenase defice 0 -
Maple Syrup Urine disease 1 -
MCADD (Medium Chain Acyl-CoA Dehydrogenase Deficiency; MCAD) 14 -
MEHMO (Mental retardation, Epileptic seizures, Hypogenitalism, Microcephaly and Obesity) 1 -
Menkes syndrome (Kinky Hair syndrome) 2 -
Metabolic Aciduria 1 -
Methionine Adenosyl Transferase 0 -
Methionine Synthase Deficiency 0 -
Methylenetetrahydrofolate Reductase Deficiency 0 -
Methylglutaconic Aciduria 2 -
Methylmalonic Aciduria 3 -
Mevalonic Aciduria 0 -
Molybdenum Cofactor Deficiency 0 -
Monamine Oxidase Deficiency (MOAD) 0 -
Multiple Hormone Deficiencies 8 -
Neualonic Aciduria 0 -
Neuroaxonal Dystrophy (Seitelberger disease; Infantile Neuroaxonal Dystrophy) 0 -
Neurovisceral Storage disease 0 -
Non-Ketotic Hyperglycaemia 1 -
Olivopontocerebellar Degeneration/Atrophy 0 -
Ornithinaemia 0 -
Ornithine Transcarbamylase Deficiency (OTC) 19 -
Oxalosis 1 -
Peroxisomal Defect 0 -
Primary Hypoparathyroidism 2 -
Progeria 2 -
Progeroid syndrome (Neonatal) 0 -
Pseudo-Hypoaldosteronism 5 -
Pseudocholinesterase Deficiency 4 -
Pyridoxal Phosphate Dependent Seizures (Pyridoxal 5'-phosphate-dependent Epilepsy) 0 -
Pyridoxine Dependent Epilepsy (Pyridoxine Dependent Vitamin B Deficiency; Pyridoxine Dependent Seizures; Pyridoxine Responsive Epilepsy; Pyridoxine Dependent Seizures) 7 -
Pyrine Autism 8 -
Pyruvate Dehydrogenase Complex 3 -
Pyruvate Dehydrogenase Deficiency 4 -
Pyruvate Kinase Deficiency 0 -
Pyruvate Kinase Deficiency Hemolytic Anemia 1 -
Richner-Hanhart syndrome (Richner syndrome) 0 G
Sandhoff disease 0 -
Serine Deficiency 0 -
Serum Cholinesterase Deficiency 3 -
Steroid Sulphatase Deficiency 0 -
Sucrose Intolerance 2 -
Sucrose Isomaltose Enzyme Deficiency 10 -
Thomsen disease 1 -
Transcobalamin Type II Deficiency 0 -
Transient Neo-Natal Hyperammonaemia 0 -
Trihydoxi Acyl CoA Dehydrogenase Deficiency 0 -
Trimethylamineuria 2 -
Triose Phosphate Isomerase Deficiency 0 -
Triosephosphate Isomerase Deficiency 0 -
Tumoral Calcinosis 1 -
Tyrosinaemia Type 1 1 -
Tyrosine Hydroxylase Deficiency (TH Deficiency; Infantile Parkinsonism; Infantile Parkinson's disease; TH-deficient Dopa-responsive Dystonia; DRD; Progressive Infantile Encephalopathy) 0 -
Urea Cycle disorder 3 -
Very Long Chain Acyl CoA Dehydrogenase Deficiency (VLCAD; VLCADD) 0 -
Vitamin B12 Uptake Deficiency 1 -
Vitamin D Dependent Rickets Type I 0 -
Weidemann Rautenstrauch syndrome 0 -

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