Brief summary: Hi im a single mum and my son has developmental delay among other issues. I've been trying my best to help and support him also working with a number of professionals but sometimes feel alone an not listened to. My son is my world and I love him to bits.
Croydon
( London Boroughs
)
Affected Person:
May 2004
Family type: Siblings:
0
Disabled siblings:
0
Brief summary: Our daughter was born 26/5/04 full term. I was without a midwife during labour and suspect our daughter suffered lack of oxygen. She has GDD, hyper mobility and low muscle tone. The full extent of our problems became apparent only 5 months ago when we sta
Brief summary: cerebral global atrophy,developmental delay altho actually age 3 his developmental age is between 18m to 24m. Also has epilepsy. He is very active, play can be flitting and destructive. only uses approx 30 words. Very happy, cuddly child
Derbyshire
( East Midlands
)
Affected Person:
Feb 2008
Family type: Siblings:
0
Disabled siblings:
0
Brief summary: Hello I am a single parent to my almost 3 year old daughter.. I am looking for advice and help or just Somebody to talk to!! We are still awaiting a full diagnosis for my daughter who currently has global developmental delay If you would like to talk ple
Affected Person:
Feb 2009
Family type: Siblings:
1
Disabled siblings:
0
Brief summary: My daughter has been diagnosed with Periventricular Leukomalacia. She has global developmental delay, sight problems and unilateral developmental dysplasia of the hip
Brief summary: I have a 2year old daughter who did not walk until 22 months. She is still not talking and only diagnosis is global developmental delay. Also delayed with play and cognitive skills. Would love to email someone in similar situation.
Affected Person:
Dec 2005
Family type: Siblings:
3
Disabled siblings:
0
Brief summary: Our very lively little girl has lots of health problems. She is hypothyroid, has no left field of vision, hearing difficulties, failure to thrive, hypermobile, anterior placed anus, developmental delay, some dysmorphic features (a little bit elf like- ver
Affected Person:
Aug 2005
Family type: Siblings:
1
Disabled siblings:
0
Brief summary: my daughter was diagnosed with microcephaly before she was born.she started having fits 4 weeks ago, and we are currently awiting a diagnosis for cohen's/pepper syndrome.to date she is doing everything a baby should do.we are so worried, and would love
Affected Person:
Oct 2001
Family type: Siblings:
2
Disabled siblings:
0
Brief summary: Our daughter was diagnosed with a chromosome abnormality (idic 15) which basically means she has global developmental delay and learning difficulties.
Affected Person:
Jan 2001
Family type: Siblings:
2
Disabled siblings:
1
Brief summary: mum to 3 children, one of which has autism and Landau Kleffner Syndrome and the other has GDD and probably Autism but too young to diagnose. and I would love to chat to other people with special needs children
Brief summary: My 9 year old daughter has a learning disability, Global development delay, foot defect and a number of other behaviour and sensory issues due to having a chromosome deletion (2q21.1)
Affected Person:
Jan 1999
Family type: Siblings:
1
Disabled siblings:
0
Brief summary: My son has Global Developmental delay. He was born 10 weeks premature needing ventilation at birth. He is now 10 with no real diagnosis. He is very hypotonic with sight and hearing problems and is unable to walk unaided. He has communication delays to
Brief summary: My eldest son (3yrs) was diagnosed with Global Developmental Day and Hypermobility. Just started walking unsupported. No communication skills. High pain threshold. Very loving but becoming routined and bites and has tantrums when he can't be understood (
Dorset
( South West
)
Affected Person:
Mar 2004
Family type: Siblings:
1
Disabled siblings:
0
Brief summary: My daughter is still undiaganosed but suffers from gross delayed myelination, global development delay, ataxia, partial deletion on chromosome 2q13 and moderate hearing loss.
Down
( Northern Ireland
)
Affected Person:
Mar 2009
Family type: Siblings:
1
Disabled siblings:
0
Brief summary: My son is almost 4 and can not talk and is not potty trained. He becomes very frustrated and angry when I can't understand what he wants. He is unaware of danger and will run away from me. He needs constant supervision.
Durham
( North East Region
)
Affected Person:
Dec 1992
Family type: Siblings:
1
Disabled siblings:
0
Brief summary: My 14 month old granddaughter has so far been diagnosed with GDD and epilepsy she has had an EEG and is due to have an MRI brain scan on monday. She has had lots of blood tests and we are still awaiting some results and although hypotonia hasnt yet been d
Affected Person:
Aug 2003
Family type: Siblings:
0
Disabled siblings:
0
Brief summary: GLOBAL DEVELOPMENT DELAY AND HYPOTONIA.AS YET OUR LITTLE PRECIOUS IS UNABLE TO STAND ON HER OWN,WALK OR TALK. EXSTENSIVE TESTING DONE AND STILL NO ANSWERES.
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