||||FAQs
Quick search

Enter condition:   Advanced search

This site has recently been updated. If you encounter any problems, please let us know.

Craniofrontonasal Dysplasia

also listed as Craniofrontal Dysostosis

3 people found, showing 1 to 3

To save room on the page we use the term disabled to indicate those with disabilities, special need or a medical condition.

 

England

  not given
Family type: not given
Siblings: 0
Disabled siblings: 0
Username: Medical Doc
Relationship: Male
Last updated: 17 Aug 2009
Brief summary: Looking for participants in Discovery Channel documentary about cranial diseases such as overgrowth syndrome, proteus syndrome and craniosynostosis.

Hampshire ( South East )

Dec 2009  female
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: meggysmummy
Relationship: Mother
Last updated: 15 Jul 2010
Brief summary: my daughter has craniofrontonasel syndrome

Warwickshire ( West Midlands )

Nov 1976  female
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: MISSJB
Relationship: Female - Same Person
Other conditions: None

Last updated: 09 Sep 2009
Brief summary: Born with Cleidocranial dysostosis with all the typical physical ailments assocated with the condition ie. differing bone structure, hearing impairment, dental problems, visual impairment. Experiend pain since childhood but progressively getting worse.

List yourself against this condition

Add yourself to this conditionAdd Yourself To This Condition. A minimum of Silver membership is required, but it's free and secure.

Related conditions 

There are conditions similar or related to this one that have people listed against them. They are listed below. If there are UK Support groups available, they will be indicated by this G icon. Click this icon to view the list of available support groups.

Condition (also listed as) No. of members Support Group
Acrocephaloplysyndactyly 0 -
Acrocephalosyndactyly 0 -
Acrocephalosyndactyly II 0 -
Acrocephalosyndactyly III 0 -
Acrocephalosyndactyly VI 0 -
Antley Bixler Syndrome 0 -
Apert Syndrome 1 -
Bicoronal Synostosis 0 -
Brachycephaly (Bicoronal Synostosis) 0 -
C-Trigonocephaly (Opitz Trigonocephaly Syndrome; C Syndrome; Trigonocephaly Syndrome) 1 -
Carpenter Syndrome 5 -
Cloverleaf Syndrome (Kleeblattschsedel Syndrome; Cloverleaf skull) 0 -
Craniofacial Cleft (Tessier Scale) 2 -
Craniostenosis 3 -
Craniosynostosis 38 -
Crouzon Syndrome 3 -
Frontal Bone Protrusion 1 -
Frontonasal Dysplasia (Median Cleft Face Syndrome; de Meyer Syndrome) 2 -
Oxycephaly (Turricephaly) 0 -
Pfeiffer Syndrome 5 -
Plagiocephaly 2 -
Proboscis Lateralis 0 -
Saethre-Chotzen Syndrome 6 -
Scaphocephaly 4 -
Trigonocephaly 6 -

© MakingContact.org 2010
Contact a Family, 209-211 City Road, London EC1V 1JN
Tel: (020) 7608 8700

Registered Charity No. 284912. Company limited by guarantee, registered in England and Wales No. 1633333.
HM Revenue & Customs charity tax reference No. XN54769.
VAT Reg. No. GB 749 3846 82