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Searching on Craniofrontonasal Dysplasia

also listed as Craniofrontal Dysostosis

2 people found, showing 1 to 2

I have found 2 people listed against Craniofrontonasal Dysplasia They are listed below, sorted by location.
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Username Affected Person

England

Medical Doc not given contact this person
updated
17 Aug 2009
not given
Relationship: Male Siblings : 0 Disabled siblings : 0  
Looking for participants in Discovery Channel documentary about cranial diseases such as overgrowth syndrome, proteus syndrome and craniosynostosis.

Warwickshire ( England )

MISSJB two parent family contact this person
updated
09 Sep 2009
Nov 1976 female
Relationship: Female The Same Person Siblings : 1 Disabled siblings : 0  
Born with Cleidocranial dysostosis with all the typical physical ailments assocated with the condition ie. differing bone structure, hearing impairment, dental problems, visual impairment. Experiend pain since childhood but progressively getting worse.

 

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( 5 ) Pfeiffer Syndrome
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( 5 ) Saethre-Chotzen Syndrome
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( 4 ) Scaphocephaly
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