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Cowden syndrome

also listed as Multiple Hamartoma syndrome

4 people found, showing 1 to 4

To save room on the page we use the term disabled to indicate those with disabilities, special need or a medical condition.

 

Birmingham ( West Midlands )

Nov 2013  not given
Family type: two parent family
Siblings: 0
Disabled siblings: 5
Username: daddysgirl10
Relationship: Female
Other conditions: None

Last updated: 03 Nov 2013
Brief summary: im from a family with cowden syndrome, its runs in my fathers genes its past from my father to my brother and 3 sisters out of my dads children im the only child who does not have cowden syndrome, I find it very difficult talking about this condition.

Bromley ( London Boroughs )

Sep 2008  male
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: Tobysmum76
Relationship: Mother
Last updated: 17 Jul 2013
Brief summary: My son has Cowden syndrome, which in him has caused global developmental delay with severe communication difficulties.

Northamptonshire ( East Midlands )

Dec 2007  male
Family type: single parent family
Siblings: 1
Disabled siblings: 1
Username: wilson12
Relationship: Mother
Last updated: 04 Nov 2011
Brief summary: He has BRRS, Cowden syndrome. His symptoms are: large head, low muscle tone, severe developmental delay, autistic spectrum disorder.

Northumberland ( North East Region )

Dec 2003  male
Family type: two parent family
Siblings: 2
Disabled siblings: 2
Username: kirthomp
Relationship: Mother
Other conditions: None

Last updated: 18 Apr 2012
Brief summary: I am the mum of 2 children with Cowden syndrome a PTEN genetic disorder. My son has had Thyroid cancer and has autism. My daughter has vascular malformations and has recently had a prophelactic thyroidectomy,

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Brain Tumour (PNET; Apendeoma; Pilocystic Astrocytoma) 9 G
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Epithelioid Haemangioendothelioma 0 -
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Pilocystic Astrocytoma 0 -
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