18 people found, showing 1 to 18
England
Affected Person:
Aug 1970
Family type:
Siblings:
1
Disabled siblings:
0
Username: jcnyer Relationship:
Female Affected Adult
Other conditions:
None
Last updated: 07 Dec 2004
Brief summary: I was diagnosed with Congenital Indifference to Pain 3 days after I was born in August 1970. I like to think I have lead a "normal" life as far as I can describe.
Affected Person:
Jan 1999
Family type:
Siblings:
0
Disabled siblings:
0
Username: joyce999 Relationship:
Other conditions:
None
Last updated: 21 Jan 2005
Brief summary: XXX
Essex
( East of England Region
)
Affected Person:
Aug 1995
Family type:
Siblings:
2
Disabled siblings:
0
Username: Harper1 Relationship:
Mother
Other conditions:
None
Last updated: 16 Feb 2010
Brief summary: recently diagnosed with congenital indifference to pain
Hampshire
( South East
)
Affected Person:
Sep 1994
Family type:
Siblings:
1
Disabled siblings:
0
Username: hannahlou Relationship:
Mother
Other conditions:
None
Last updated: 21 Jul 2008
Brief summary: 14 year old daughter diagnosed at 15 months.
location not given
Affected Person:
Nov 1981
Family type:
Siblings:
2
Disabled siblings:
0
Username: CloryM Relationship:
Female Affected Adult
Other conditions:
None
Last updated: 30 Dec 2005
Brief summary: Born with Congenitial Insentivity to Pain..
Affected Person:
May 1990
Family type:
Siblings:
1
Disabled siblings:
0
Username: Colby 04 Relationship:
Mother
Other conditions:
None
Last updated: 10 Nov 2004
Brief summary: My daughter was born with congenital insensitivity to pain. I would love to hear from another parent with a child with this disability.
Affected Person:
Feb 2003
Family type:
Siblings:
2
Disabled siblings:
0
Username: krabi79 Relationship:
Mother
Other conditions:
None
Last updated: 16 Feb 2005
Brief summary: no summary given
Affected Person:
Nov 2007
Family type:
Siblings:
0
Disabled siblings:
0
Username: peeps1 Relationship:
Parent
Other conditions:
None
Last updated: 15 Apr 2010
Brief summary: Feels No Pain - Currently waiting for DNA results for SCN9A.
Affected Person:
Sep 1979
Family type:
Siblings:
0
Disabled siblings:
0
Username: shivers Relationship:
Female
Other conditions:
None
Last updated: 21 Feb 2006
Brief summary: no summary given
Affected Person:
Apr 1980
Family type:
Siblings:
4
Disabled siblings:
2
Username: what_pain Relationship:
Male Affected Adult
Other conditions:
None
Last updated: 15 Sep 2005
Brief summary: As far as I know I am the oldest in the UK suffering from Congenital insensitivity to pain.
Scotland
Affected Person:
Feb 2007
Family type:
Siblings:
0
Disabled siblings:
0
Username: Xphile_mo Relationship:
Mother
Other conditions:
None
Last updated: 14 Jun 2009
Brief summary: 2 year old girl with pain insensivity and autonomic dysfunction
see www.understandingalyssa.blogspot.com for more details
United States of America
( Americas
)
Affected Person:
Feb 2009
Family type:
Siblings:
1
Disabled siblings:
0
Username: azurite7 Relationship:
Mother
Other conditions:
None
Last updated: 07 Jul 2010
Brief summary: My son was diagnosed with Congenital Indifference to Pain at 9.5 months of age.
Affected Person:
Feb 1994
Family type:
Siblings:
4
Disabled siblings:
2
Username: flynmomma Relationship:
Mother
Other conditions:
None
Last updated: 20 Oct 2007
Brief summary: I have 2 daughters with HSAN II. They are now teenagers. The early years were very difficult. They have learned how to protect themselves although 1 daughter has many joint problems now. Would like to be able to help others.
Affected Person:
Jan 2000
Family type:
Siblings:
1
Disabled siblings:
0
Username: GABBYSDAD Relationship:
Father
Other conditions:
None
Last updated: 24 Nov 2004
Brief summary: Congenital Insensitivity to pain with Anhidrosis. Looking for more families with same. Check Web site www.gift-of-pain.org
Affected Person:
Jul 2005
Family type:
Siblings:
5
Disabled siblings:
0
Username: Kinleysdad Relationship:
Father
Other conditions:
None
Last updated: 11 Jan 2006
Brief summary: Daughter, 5 mo. old, was diagnosed with CIPA 01-10-06.
Affected Person:
Aug 2005
Family type:
Siblings:
4
Disabled siblings:
0
Username: Maliasmom Relationship:
Mother
Other conditions:
None
Last updated: 04 Aug 2006
Brief summary: I think my infant daughter may have congenital insensitivity to pain. She is constantly poking her thumb in her eye and causing it to bleed and she will also stick her thumb in her ear and scratch it until it bleeds. She does not cry when she does these
Affected Person:
Apr 1988
Family type:
Siblings:
1
Disabled siblings:
0
Username: SamsMom Relationship:
Mother
Other conditions:
None
Last updated: 02 Nov 2004
Brief summary: My daughter was diagnosed with Congenital Analgia at age 1. We have lived through many mishaps with her not being able to feel pain. We would love to talk to anyone else who is in the same situation.
Affected Person:
Jun 2007
Family type:
Siblings:
1
Disabled siblings:
0
Username: tlc123 Relationship:
Mother
Other conditions:
None
Last updated: 07 Feb 2009
Brief summary: My child has congenital indifference to pain.
Contact a Family Directory
A page for this condition is in the Contact a Family Directory , it may be able to help you further.
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