Brief summary: Child was born with congenital cataracs in both eyes. She was under surgery four times. She has also bilateral anterior coloboma. Now she is with normal development (milestones). She has -14.
Bedford Borough
( East of England Region
)
Affected Person:
Dec 2004
Family type: Siblings:
1
Disabled siblings:
0
Brief summary: My daughter was diagnoised with coc kayne syndrome on the 11th August 2005, she has microcephaly, seizures and was born with cataracts. she has had a double lensectomy and now wears contact lenses. I have another child he is 2yrs older and all is well wit
Cheshire East
( North West
)
Affected Person:
Oct 2005
Family type: Siblings:
2
Disabled siblings:
0
Brief summary: We have a wonderful daughter who is 2 and a half. She was born with Down's Syndrome, a complete AVSD and bilateral congenital cataracts.
Derbyshire
( East Midlands
)
Affected Person:
Feb 2009
Family type: Siblings:
1
Disabled siblings:
0
Brief summary: My daugther is one year old. She has WAGR Syndrome. She was born with bilateral cataracts which have since been removed. She is visually impaired and wears contact lenses. I would welcome contact from any others with WAGR, cataracts, visual impairment.
Durham
( North East Region
)
Affected Person:
Oct 2004
Family type: Siblings:
2
Disabled siblings:
0
Brief summary: my daughter is visually impaired because she has the hereditory cataracts. she is a delightful child but suffers the same problems as any other visually impaired child. i've had really good support from family and the hospital and from other outside orgn
Leicestershire
( East Midlands
)
Affected Person:
Jan 2008
Family type: Siblings:
5
Disabled siblings:
1
Brief summary: I am making up a list of names of families caring for children with cataracts.
My website is: www.geocities.com/catseyeswebsite
I would be happy to put any who is interested on the list.
Affected Person:
Jun 2005
Family type: Siblings:
0
Disabled siblings:
1
Brief summary: My baby boy was born with congenital cataracts as a result of CMV infection. No other problems so far, although we are having regular hearing checks.
Vale of Glamorgan
/ Morgannwg
( Wales
/ Cymru
)
Affected Person:
Jun 2009
Family type: Siblings:
1
Disabled siblings:
0
Brief summary: My daughter was born with congenital bilateral cataracts, she has a visual impairment as a result. She also has a milk and rice allergy. She is a happy little girl and the light of my life, would love to meet other families x
Affected Person:
Oct 2005
Family type: Siblings:
3
Disabled siblings:
0
Brief summary: I am the mother of a little girl born in 2005 with congenital toxoplasmosis. This caused an under-developed occipital/visual cortex, cataract and micophthalmia which left her with no vision in one eye. She has had lensectomy, and thankfully fluid presen
If a UK Support group is available for this condition you can access their details by using the above link and clicking on the blue 'Is there support?' option on the right menu of the screen.
Related conditions
There are conditions similar or related to this one that have people listed against them. They are listed below. If there are UK Support groups available, they will be indicated by this icon. Click this icon to view the list of available support groups.
|
|
|
|
Add Yourself To This Condition. A minimum of Silver membership is required, but it's free and secure. 
icon. Click this icon to view the list of available support groups.
