6 people found, showing 1 to 6

To save room on the page we use the term disabled to indicate those with disabilities, special need or a medical condition.

Cambridgeshire ( East of England Region )

Affected Person: Feb 2007 
Family type:
Siblings: 0
Disabled siblings: 0

Username: CSIFAN
Relationship: Mother

Other conditions:
Limb Abnormalities (5)

Last updated: 11 Dec 2007

Brief summary: MY DAUGHTER WAS BORN WITH HER LEFT ARM BELOW THE ELBOW MISSING, WE KNEW ABOUT THE PROBLE FROM OUR 20 WEEK SCAN.

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Affected Person: Apr 2010 
Family type:
Siblings: 0
Disabled siblings: 0

Username: myrtle80
Relationship: Mother

Other conditions:
Limb Abnormalities (5)

Last updated: 21 Jun 2010

Brief summary: Lower arm missing

England

Affected Person: Sep 2006 
Family type:
Siblings: 1
Disabled siblings: 0

Username: jarrow06
Relationship: Mother

Other conditions:
Cleft Lip and/or Palate (21)
Heart Defects (34)
Nager Syndrome (3)
Tracheostomy (28)

Last updated: 19 Mar 2010

Brief summary: I live in Tyne and Wear with my son who has Nager Syndrome with CAVSD. I want to have contact with other families whose children have this condition in the UK.

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Affected Person: Mar 2006 
Family type:
Siblings: 0
Disabled siblings: 0

Username: pochiluv
Relationship: Mother

Other conditions:
Coats' Disease (8)
Cornelia De Lange Syndrome (12)

Last updated: 14 Jul 2010

Brief summary: not given

location not given

Affected Person: Jan 1971 
Family type:
Siblings: 0
Disabled siblings: 0

Username: TVlondon
Relationship: Female

Other conditions: None

Last updated: 28 Feb 2006

Brief summary: no summary given

Somerset ( South West )

Affected Person: Mar 2008 
Family type:
Siblings: 5
Disabled siblings: 0

Username: mumof6inneed
Relationship: Mother

Other conditions:
Skeletal Problems (1)
TAR Syndrome (10)

Last updated: 28 Jun 2008

Brief summary: my baby was born with bilateral radial clubhand

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Related conditions 

There are conditions similar or related to this one that have people listed against them. They are listed below. If there are UK Support groups available, they will be indicated by this icon. Click this icon to view the list of available support groups.

Condition (also listed as)	No. of members	Support Group
Amputation	1	-
Congenital Macrodactyly	30	-
Dupuytren Contracture	0	-
Lower Limb Abnormalities (Hip Dysplasia,Multiple Epiphyseal,Dysplasia)	16