||||FAQs
Quick search

Enter condition:   Advanced search

This site has recently been updated. If you encounter any problems, please let us know.

X-linked Juvenile Retinoschisis

also listed as Hereditary Retinoschisis

8 people found, showing 1 to 8

To save room on the page we use the term disabled to indicate those with disabilities, special need or a medical condition.

 

Clackmannan ( Scotland )

Apr 2006  male
Family type: single parent family
Siblings: 1
Disabled siblings: 0
Username: chloedoll
Relationship: Mother
Other conditions: None

Last updated: 22 Oct 2006
Brief summary: my son has just been diagnosed with retnalschisis

location not given

Sep 1990  male
Family type: two parent family
Siblings: 1
Disabled siblings: 0
Username: ironlady
Relationship: Mother
Other conditions: None

Last updated: 22 Sep 2006
Brief summary: my son was diagnosed with retinoschisis after a routine eye test, it is present in my family on fathers side

Jul 2005  male
Family type: two parent family
Siblings: 0
Disabled siblings: 0
Username: junior
Relationship: Mother
Other conditions:
Juvenile Retinoschisis (2)

Last updated: 26 Sep 2005
Brief summary: Recently diagnosed with retinoschisis. Looking for contact with families who have experienced this.

Feb 1991  male
Family type: single parent family
Siblings: 1
Disabled siblings: 0
Username: poshpaws
Relationship: Mother
Other conditions: None

Last updated: 30 Mar 2005
Brief summary: son diagnosed with x linked juvenile retinoschisis 5 yrs ago after being told it was lazy eye, great ormond street hosp....fantastic, condition combined with risk of eye heamorrage

New Zealand ( Australasia )

Jan 2009  male
Family type: two parent family
Siblings: 0
Disabled siblings: 0
Username: funkypenguin
Relationship: Father
Other conditions: None

Last updated: 14 Jan 2009
Brief summary: My wife is a carrier of x-linked juvenile retinoschisis. We hope to make contact with other affected families.

Aug 2009  not given
Family type: two parent family
Siblings: 0
Disabled siblings: 0
Username: scorpiogirl
Relationship: Female
Other conditions: None

Last updated: 11 Aug 2009
Brief summary: Carrier (mother) of x-linked retinoschisis, father affected. Waiting to see if baby son has the condition or not.

Northern Ireland

Apr 1997  male
Family type: not given
Siblings: 0
Disabled siblings: 0
Username: greenie
Relationship: Male
Other conditions: None

Last updated: 19 Jul 2007
Brief summary: After a few interviews and tests the condition has been confirmed. Apart from glasses, no other aids are required as yet.

United States of America ( Americas )

Feb 1972  male
Family type: single parent family
Siblings: 2
Disabled siblings: 2
Username: stefannoel
Relationship: Male - Same Person
Other conditions: None

Last updated: 26 May 2010
Brief summary: my brother went blind at the age of 12 because of the disease. I am legally blind and my oldest brother as well.

List yourself against this condition

Add yourself to this conditionAdd Yourself To This Condition. A minimum of Silver membership is required, but it's free and secure.

© MakingContact.org 2010
Contact a Family, 209-211 City Road, London EC1V 1JN
Tel: (020) 7608 8700

Registered Charity No. 284912. Company limited by guarantee, registered in England and Wales No. 1633333.
HM Revenue & Customs charity tax reference No. XN54769.
VAT Reg. No. GB 749 3846 82