Brief summary: My daughter has Distal Arthrogryposis and a lot of other medical problems also.It would be good to talk too people who understand and are in the same position as us.
Devon
( South West
)
Affected Person:
May 2007
Family type: Siblings:
0
Disabled siblings:
0
Brief summary: Both myself and my daughter have arthrogryposis but I have never been diagnosed properly. Thought my children wouldn't be affected but my daughter is. Would be interesting to know about any other cases of possibly hereditary arthrogryposis as I believe t
Essex
( East of England Region
)
Affected Person:
Nov 2003
Family type: Siblings:
3
Disabled siblings:
0
Brief summary: Hi I am a single mum with two great children.Leon my son who is 13 and Kia my daughter who is 6.My daughter was born with arthrogyposis dislocated hip severe bilateral talapes and scoliosis of the spine.Would love to speak to other familys .
Fife
( Scotland
)
Affected Person:
Jan 2006
Family type: Siblings:
0
Disabled siblings:
1
Brief summary: i was told tyler had arthrogryposis when i was 19 weeks pregnant he is now 2 years old and only had surgery on his feet he is effected in all 4 limbs and his hips are dislocated.
i am looking for someone to talk to about the condition and have a friend i
Hackney
( London Boroughs
)
Affected Person:
Aug 1986
Family type: Siblings:
1
Disabled siblings:
0
Brief summary: My son was diagnosed with Arthrogroposis multiplex congenita. I have never contacted anyone over the years and was wondering if there were any teenagers or adults with this condition whom I or he could talk to.
location not given
Affected Person:
Jun 2002
Family type: Siblings:
2
Disabled siblings:
1
Brief summary: i reside in pakistan and my 4 year old son in AMC. we are looking to move to uk for better medical prospects. would like guidance from the members.
Brief summary: my daughter was diagnosed with amyoplasia shortly after birth i do not know a lot about long term prognosis it would be nice to speak to someone in a similar situation who knows a bit more about the condition!
Northamptonshire
( East Midlands
)
Affected Person:
May 2000
Family type: Siblings:
2
Disabled siblings:
1
Brief summary: My son is 20 months. He has Arthrogriposis and Genralized Hypotonia. And other problems. We have never had a diagnosis of what specifically he has and why. Would be good to talk to other people about there expericences.
Brief summary: My son age two born at 30 weeks with PROM and oligohydramnios at 17 weeks was diagnosed with CP last year now being questioned as arthrogryposis. He is unable to stand alone or walk but cruises around furniture like a good en. He has physio, standing fra
Brief summary: I am a mother of an 7 year old boy with PMG. He was diagnosed at the age of 3. He has low tone. Cerebral palsy. He had bilateral club feet that have been corrected with surgery. He has a feeding tube and is has been eating orally for about 3 years. No
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