11 people found, showing 1 to 11

To save room on the page we use the term disabled to indicate those with disabilities, special need or a medical condition.

Blaenan Gwent ( Wales / Cymru )

Affected Person: May 1993 
Family type:
Siblings: 5
Disabled siblings: 0

Username: MADWOMAN
Relationship: Mother

Other conditions: None

Last updated: 28 Jul 2010

Brief summary: POLYMICROGYRIA MY SON WAS DIAGNOSED WITH POLYMICROGYRIA AT 5 MONTHS OLD.

Cornwall ( South West )

Affected Person: Oct 2003 
Family type:
Siblings: 1
Disabled siblings: 0

Username: constantin
Relationship: Father

Other conditions: None

Last updated: 12 Feb 2006

Brief summary: My son has recently been diagnosed with Bilateral Polymicrogyria. He has Ptosis and is shortly due to undergo an operation to have his eyelids lifted. Will the benefits outweigh the risks? Anyone with a similar condition?

England

Affected Person: Feb 2008 
Family type:
Siblings: 0
Disabled siblings: 0

Username: archieb
Relationship: Mother

Other conditions:
Epilepsy (139)
West Syndrome (64)

Last updated: 21 Dec 2008

Brief summary: our son has bilateral frontal polymicrogyria and absent corpus collosum he has infantile spasms (west syndrome) daily. He is a wonderful little boy with a big personality. It would be great to speak to someone in the same or simular situation as us.

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Affected Person: Jan 1999 
Family type:
Siblings: 0
Disabled siblings: 0

Username: happychick
Relationship: Mother

Other conditions: None

Last updated: 28 Aug 2008

Brief summary: polymicrogyria

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Affected Person: Aug 2007 
Family type:
Siblings: 1
Disabled siblings: 0

Username: Mumma2Twins
Relationship: Mother

Other conditions: None

Last updated: 09 Nov 2008

Brief summary: My son Matthew was daignosed with Polymicrogyria at 5 months old

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Affected Person: Sep 2007 
Family type:
Siblings: 2
Disabled siblings: 0

Username: shiningstar
Relationship: Mother

Other conditions: None

Last updated: 10 Aug 2010

Brief summary: My daughter has generalised bilateral polymicrogyria, visual impairment and global delay.

Flintshire / Sir Fflint ( Wales / Cymru )

Affected Person: Jun 2005 
Family type:
Siblings: 1
Disabled siblings: 0

Username: dimples
Relationship: Mother

Other conditions:
Isolated Lissencephaly Sequence (1)
Lissencephaly (15)

Last updated: 27 Sep 2007

Brief summary: Beautiful daughter with Lissencephaly/Acute bi-lateral polymicrogyria

Lancashire ( North West )

Affected Person: May 2000 
Family type:
Siblings: 0
Disabled siblings: 0

Username: AACadvocate
Relationship: Female Friend

Other conditions: Aphasia (4)

Last updated: 11 Oct 2007

Brief summary: Looking for families of children with communication difficulties to help with university study.

location not given

Affected Person: Nov 2002 
Family type:
Siblings: 0
Disabled siblings: 0

Username: platinum06
Relationship: Female Friend

Other conditions: None

Last updated: 29 Sep 2006

Brief summary: hi the child is my partners son and i have tried for months to find information out about polymicrogyria and found it difficult i just need somebody that could explain a couple of facts about the condition as it is difficult for me to question his mother

North Yorkshire ( Yorkshire and the Humber )

Affected Person: Jul 2007 
Family type:
Siblings: 0
Disabled siblings: 0

Username: vitsamutsu
Relationship: Mother

Other conditions: None

Last updated: 11 Dec 2009

Brief summary: Our son Dylan was diagnosed with bilateral- perysilvian polymicrogyria when he was about 6 months old.

United States of America ( Americas )

Affected Person: Mar 2000 
Family type:
Siblings: 2
Disabled siblings: 0

Username: willynvee67
Relationship: Mother

Other conditions:
Arthrogryposis (15)

Last updated: 12 May 2008

Brief summary: I am a mother of an 7 year old boy with PMG. He was diagnosed at the age of 3. He has low tone. Cerebral palsy. He had bilateral club feet that have been corrected with surgery. He has a feeding tube and is has been eating orally for about 3 years. No