Brief summary: Son, aged 23, diagnosed as mowat-wilson syndrome in 2004. Fits overall syndrome. Life's been a rollercoaster, intense but mostly good. Would like to make contact with other families.
Brief summary: MY SON WAS DIAGNOSED WITH MOWAT-WILSON SYNDROME JUNE 2005. HE IS A VERY HAPPY AND LOVING CHILD ALTHOUGH HIS FEW YEARS OF LIFE HAVE BEEN DIFFICULT HE IS THE STRONGEST LITTLE MAN IN MOMMY'S EYES.WOULD LIKE TO MAKE CONTACT WITH OTHER FAMILIES.
location not given
Affected Person:
Oct 2000
Family type: Siblings:
0
Disabled siblings:
0
Brief summary: Deby and I are the grandparents of Chase, diagnosed with MWS in March of 2004. We have legal custody of him and are currently raising him. He is a wonderful child and always has a smile on his face. He is the light of our lives.
Affected Person:
Mar 1998
Family type: Siblings:
0
Disabled siblings:
0
Brief summary: My gorgeous daughter was diagnosed with MWS 4 years ago following many years of tests. She had continual ear infections from birth plus bowel and bladder problems. At puberty she became epileptic. She can be very aggressive and troubled and has severe l
United States of America
( Americas
)
Affected Person:
May 2005
Family type: Siblings:
1
Disabled siblings:
0
Brief summary: Our daughter was born with many medical issues including right coronal craniosynostosis which was corrected at 5 months. She has been hospitalized numerous times for failure to thrive, severe acid reflux, rsv and pulmonary issues. We finally received her
Affected Person:
Aug 2007
Family type: Siblings:
1
Disabled siblings:
0
Brief summary: My beautiful daughter was diagnosed with MWS 8 days before her first birthday! We new by age 2 weeks something was different & here we are!
Affected Person:
Oct 2004
Family type: Siblings:
2
Disabled siblings:
0
Brief summary: my name is Tamsin and I am the mother to an amazingly wonderful 4 year old son with Mowat-Wilson syndrome, and to his 2 incredible siblings
Brief summary: our eldest son has recently been diagnosed with MWS, he has severe learning disabilities,
with severe poorly controlled epilepsy and
chronic constipation.Generally a placid happy child who has younger brother without any problems.
Wiltshire
( South West
)
Affected Person:
Jan 2005
Family type: Siblings:
1
Disabled siblings:
0
Brief summary: Jake is two, he is being *******ed for every thing under the sun, he has PVL but CP has been ruled out. They are now *******ing for angelmans and the mowart wilson. He is also Dairy intolerent.
If a UK Support group is available for this condition you can access their details by using the above link and clicking on the blue 'Is there support?' option on the right menu of the screen.
|
|
|
|
Add Yourself To This Condition. A minimum of Silver membership is required, but it's free and secure. 
